It's difficult because her care is so specialized I essentially cannot work, and have to devote myself to her care (at home nurses are a lot more expensive than me not working). But, it still is a huge detriment to our finances me being unable to work.
On top of our normal bills, we get unexpected ones all the time as insurance doesn't cover all her medical supplies and she simply needs them to survive from day to day, so there is no cutting back on those. And we can't cut out anymore expenses we're living hand to mouth and barely at that. I wouldn't trade my daughter for anything, but if anyone cares to donate everything and anything would be appreciated. Also, one day when I have the ability, I will pay forward any help I receive.